Caleb Johnson has rare brain tumor removed

3:53 PM, Feb 4, 2013   |    comments
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By WBIR web staff

Caleb Johnson, 5, is back at his Jacksboro home resting after a very long and hard journey.

His mom, Amanda Johnson, said "It's definitely been a hard road and stressful."

She said her son started having violent seizures when he was 18-months-old.

"It was scary. The hard part is watching him and me not being able to take his pain away with me being the mom because you know moms kiss boo-boos and we take care of everything," said Johnson.

An MRI showed Caleb had a rare type of cancerous brain tumor, one doctors told her was extremely dangerous.

"The surgeon said on a scale of one to 10, he was a 10 for 10. Those were his exact words. He had everything stacked against him, the location, the size, and everything," she said.

Caleb had to travel to Levine Children's Hospital in Charlotte, North Carolina where doctors there are some of the only in the country who could perform the surgery.

The first surgery was performed on January 25 and took about eight hours. The second surgery, performed on January 30, took about two hours.

"When he came out of surgery and he was kind of starting to come to, he looked at the nurse and said 'Can I ride in the big truck,'" said Johnson.

Caleb was talking about his uncle's big, black truck. And when he was released from the hospital, he rode in his uncle's truck from the hospital in Charlotte back home in Jacksboro to recover.

"Hopefully he will not have any more seizures and he can live a normal life now," said Johnson.

She said since the two surgeries Caleb has not had any seizures.

Caleb has to head back to the hospital on February 19 for a checkup.


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